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Following are letters or excerpts of letters received from caregivers of patients with CBGD. Permission has been granted to copy them. To view, click on the blue underlined text to go to that particular page.

Alan G. McIlvaine, Scottsdale, AZ.

Theresa Roberts, Long Beach, CA.

Darcy Croissant, Glenwood Springs, CO.


Sandra Till, UK

Robert Hall, South bend, IN.

Louise Davis, Australia

Sandra Roberts, Norfolk, VA

Judy Graham, Daughter of Dottie Powell, Shady Shores, Texas.